Wednesday, April 29, 2009

Don't go D!!

I don't want you to go babe!! I'm going to miss you so much! But I'll be here when you get home. *cries*

Saturday, April 25, 2009

Getting helthier!?

Really? Could I be getting healthier?? In about 7 months my PFTs have gone from a baseling of 47% to 57%. 10 whole points! 60% is within reach here people! I gotta start riding my bike to work! I bet that would kick it into gear even more. I could probably lose a couple of pounds too.

In 2 months I've gained 6 pounds! I mean I know insulin helps you keep your weight but this is nuts! My clothes don't fit and I cannot afford to replace my wardrobe! Plus I am getting cottage cheese thighs! I never thought I would have to worry about cellulite, that's for other people.

Going on lyrica has helped my pain immensely! I have been in pain on some level, every day for 10 years! And now its rare that I even need to take Tylenol. The massages were great but they were not this good, and no match for the aches that antibiotics gave me! I see the rhuematologist at the beginning of June and if he doesn't hook me up with a longer perscription he better watch out!

Thursday, April 23, 2009

My address

What is the problem with people getting my address correct? I have had numerous things that get returned to the sender because they have my address wrong! Usually its my apartment number, although I am very careful to say its "N as in Nancy, 206." But today I got something, and it will forever be a mystery as to how I got it at all, that had my street as 8th, when its actually 85th. Seriously, I don't get it!

I have had more issues with mail since moving in here. Not just people getting my address wrong but also stuff just getting lost period, or coming postage due so then I have to go down to the post office to fetch it. I just don't understand!

Thursday, April 16, 2009


So I called my medical insurance and they told me to get letters of necessity to see about getting them to pay for my teeth. So I called the CF clinic and am waiting for a calle back to get them to write a letter telling them what has caused my teeth to be in the shape that they're in. Then I called the oral surgeon's office. And here is where I blew my top. The doctor and I had talked about taking all my teeth out starting with the top ones. He told me to get established with a denturist so that when the time comes I can get a partial denture. And that was all I was told, other than that they would help me however they could.

When I called today the woman I talked to said that there was nothing in my chart about which teeth need to be removed, what the game plan is.....nothing. I said that we had talked about all this and I didn't understand why there was nothing to this effect in my chart. She said that I need to see the denturist, he will say what teeth need to be removed, then I have to come back to the surgeons office for another appointment where they will follow what the denturist said. What the hell!? He's a god damn surgeon! As far as this stuff goes he's the top of the food chain as far as I'm concerned! Why does he need a fucking denturist to tell him what to do!? The denturist just plugs up the spaces left when the surgeon gets done!! AAAAAAAAAAAAAH!

Tuesday, April 14, 2009

Mah Teefs

I saw the oral surgeon today about my shitty teeth. He agreed to take them all out. He wants to do it in stages, which is fine since the idea of an all in one job skeeved me the hell out. I have to get a referal to a restorative dentist so that I have somewhere to go to get a partial after stage 1 is completed. He wants to do the uppers first because the bottom ones aren't as bad and I could be able to keep them for a few more years. Again, fine by me. The right side is already pretty much started (pfffffft) since I lost 2 on that side since December.

I didn't realize that you can lose up to 70% of your sense of taste without teeth! WTF do teeth have to do with taste!? He also said that my ability to chew would be significantly lowered but it can't be much worse than it is now, hell I can't eat Frosted Flakes without teeth falling out!

Monday, April 6, 2009

What is it so hard!?

I called the diabetes clinic to get a new meter. They were out of my model so they mailed me a coupon for a free one from the pharmacy. It says right on the fucking thing that a perscription is required for the pharmacy to honor it. Was there a scrip in the envelope? Of course not. So of course this was a Friday when I got the thing, after the clinic had closed. So I had to wait until today to call them. I called at 10:30 in the morning on my lunch break. I said that whoever mailed it should have known that it required a scrip and should have included it and I wanted it called or faxed in so I could pick it up after work.

I got off work at 2:00 and got to the pharmacy at about 2:30. They didn't have the scrip. I have NEVER had a doctor's office take 4 hours to call something in! I was pissed, so I called again. I appologized in advance to the receptionist because I was furious and I understood that it wasn't her fault. I asked her why they couldn't get someone to sign a paper and someone else to cram it in a fax maching in 4 HOURS! She said she would get it to the nurse practitioner I see as soon as she was done with her patient.

The medical assistant called me back when I was on my way home. I couldn't wait on them because I had to get home to infuse my ceftaz. She said she was calling it in right then. I told her that the staff there needs to be informed that if they are going to send people these coupons that they need to include a scrip. She asked me why I didn't just come to the office to get a meter. I said that I live 25 miles away, work during the hours they are open, don't drive, and to top it off they were OUT OF MY METERS WHEN I FUCKING CALLED THEM!!!!!! I told them that if the guy who sent it would have just read the damn thing that there wouldn't be a problem.

So I still don't have the fucking thing more than a week later! It's only $20 but why the hell should I pay $20 when I am supposed to be able to get it for free!? I don't have any extra money to go around so anytime I can save a few bucks is really helpful. Damn I am fucking pissed!

Wednesday, April 1, 2009


So I got my PICC today. The nurse was able to get it on the first try thank gawd! Last time I was mangled. I think this will be my last PICC. My veins are SO small that they are never sure if they can get them in or not. Then once I've had a PICC on a vein it shrivels up and its useless afterward. So at my next clinic visit at UW we'll talk ports. Seems like it would be easier all around. That's all I have to report so far. Cross your fingers and toes and anything else that ceftaz doesn't make me hurt all over.