Tuesday, August 26, 2008


Insomnia returned with avengence this week. Yes, even with my sleeping pills. *sigh* I upped it to 2 pills (I can take as many as 3 at a time) in hopes that it will work better. I did sleep better last night but I have a lot of sleep debt to catch up on. I can't wait for my sleep study!!! I'm convinced that my O2 is dropping.

Monday, August 18, 2008

Clinic visit.

It was a good visit!! Yay!!! My PFTs were back up to baseline which is awesome considering they were down at the end of IVs last month, I'm only 2 weeks post-op for my shoulder (I did really well with that lung-wise), and my sinuses are acting up. I thought for sure they would be down. So that's GREAT!!

Also, I'm getting a sleep study. There are 2 docs at my clinic and for the past year and a half or so I've only seen one of them but today I saw the other one. He had no issues at all about doing the study where as the other doc didn't think it was necessarry and wouldn't order it. So from now on I will be asking to see this doc. He seems to be a lot more receptive to my suggestions. He asked my reasons for wanting the stuydy and thought they were all very valid so he had no issue with ordering it. I'm not sure how long it will take to get in, all the paperwork for the referal has to get done, but I'm excited!

Other than that we just tweaked my vitamin D dosage a bit. See you all in chat tonight!

Monday, August 11, 2008

Updates and good news

So I know I've been slacking on the blogs but I'm a busy woman!
My shoulder is doing very well. I saw the doctor last week and he was very happy with the repair and expects it to heal just fine as long as I'm good and careful with it for a while. I go back in a month to see if I need physical therapy or not. I was instructed that I should be able to raise it all the way up with my passive excersises (not using my muscles, just a pulley thing I have rigged up so that I can hold on and use my right arm to raise my left) by the end of this week. Well I already can. So I figure I'm ahead of schedule.

This weekend is my grandparents 60th anniversary party in Oregon. I'll get to see a lot of family I rarely get to see and some cousins that I haven't seen in ages. So that will be fun.

I got an apartment! Well, I don't take pocession until the end of the month but I got approved. I move in on the 31st. I'm really looking forward to having a place all to myself. No one else to clean up after, it will be QUIET when I'm trying to sleep. I can have whatever I want to eat whenever I want it. And I can walk around naked all I want!

Wednesday, August 6, 2008

The last thing I need....

....is a suicidal brother. But that is exactly what I have. Long story shortened a LOT....he was dating some girl he works with and she was a nut job, so they broke up, then yesterday she was running around talking about her new boyfriend. So my brother left a suicide note on his managers desk. The manager called me today since I'm his emergency contact. I called our mom and found out that his shrink checked him into a local hospital. So hopefully he will get help.

I dealt with a suicidal husband and I really don't need to do this again. Suicidal people don't really realize how big of a burden this is on their family. They may come to realize it later, but in the moment they are so focussed on their own perceived suffering that they can't think of anyone else. And I will pretty much get to carry this myself since my parents aren't very close by. Thank you so much.

Sunday, August 3, 2008


Fibromyalgia is: Fibromyalgia (pronounced fie-bro-my-AL-juh) is one of the most common chronic widespread pain conditions. The condition affects millions of people in the U.S.
The causes of fibromyalgia are still not fully known, but recent data suggest that changes in the central nervous system may contribute to the chronic pain of this condition.

And I have it......yay.....

I went to my rhuematologist again and yep, sure enough we're going with fibromyalgia. He still thinks I may have some arthritis going on as well but not sure how much. So once I am off pain meds from my surgery then I am going to take low doses of prednisone for 10 days. If I have a dramatic improvement then its more arthritis, if not then its the fibromyalgia.

If the prednisone works he gave me a scrip for some other stuff to take that is not an immune suppressant. He also gave me instructions to give to my physical therapist once I start going for my shoulder. He wants me doing light, low-impact excersise and gradually build up to more difficult stuff as I tolerate it. I forgot to ask about accupuncture, but I will email him for that.