What to make of this month that's brought so many changes on? Diabetes, oxygen, full time glasses, the deaths of friends. Welcome to my life. It seems that I get a raging shit storm for a little while, then a whole lot of nothing. The last shit storm was at the end of 2007 with mono, appendicitis, and my first IVs. I suppose I should feel blessed that I made it more than a year without having another one.
For the most part I have taken all this in stride. The medical stuff was going to happen sooner or later. CF and family history make diabetes inevitable. And as you all know I have been fighting for the O2 for over a year. I look forward to some decent sleep.
Last night was my first night with the O2. Its too early to tell how its going to go. But I did sleep better than usual last night. We'll see if it keeps up. I do feel more awake today, and haven't had to take half a bottle of Aleve to keep my head from exploding and my back from breaking in half from my agonized writhing. So I'm hopeful.
Its the triple dose of death lately that has me really looking forward to the end of this month. Too bad D is in Vegas on training. Stupid military. What am I going to get him for his birthday anyway?
Saturday, February 28, 2009
Wednesday, February 25, 2009
Its about damn time!
Its a miracle! I am getting set up with nocturnal oxygen! There was an email in my inbox today from one of the doctor's I have been for half a century (seems like that long anyway) that he is having the RT set it up.
It only took a year of asking, begging, yelling, threatening, crying, screaming, and finaly swearing a blood oath that I would never set foot in that place again. I am still going to be seen at Denver, that appointment is on May 6th, and plan on moving. But at least now I can have my O2 and maybe get some decent sleep!
It only took a year of asking, begging, yelling, threatening, crying, screaming, and finaly swearing a blood oath that I would never set foot in that place again. I am still going to be seen at Denver, that appointment is on May 6th, and plan on moving. But at least now I can have my O2 and maybe get some decent sleep!
Sunday, February 15, 2009
Frustration
How do I describe my mood today but frustrated? I am so sick of going into clinic every few months and begging for a test or for oxygen and getting shot down more often than not. And who do I complain to when the person who is the problem is the head of the department? What am I supposed to do? If I never went back there I'd be getting the exact same level of care that I'm getting now....which is to say NONE....and I wouldn't have to waist my time and sanity on it.
Tuesday, February 10, 2009
Three
Well, I know I haven't blogged in a while, but I've been overwhelmed lately. So why is this blog called Three? Well, as they say things come in threes and I have a perfect example.
2 weeks ago today D's sister passed away. She had a short battle with cancer. D was able to go home and be with his family. He seems to be doing ok with it, although he is on valium to help relax because obviously he is under a huge amount of stress.
I thought this next example was my number 2 but I was wrong. My best friend's mom was diagnosed with terminal lung and liver cancer the same week that D's sister passed. Even though they gave her about a year I thought that the imending death was number 2. I'll get back to this.
Last week my wonderful Jenn passed away. She was a part of the CF family. I took this pretty hard, I was pretty close to her. Its hard to imagine that I will never see her in chat again. She was very sipportive, funny, and had a lot of wisdom about life in general and CF especially. I miss her so much. Breathe easy my friend.
Last night my friend's mom, the one mentioned above, went into resperatory failure and passed away on the way to the hospital. In a way this was for the best, no long drawn out suffering from the cancer. Of course my friend is taking this pretty hard, he was not prepared for this since he thought he had about a year with her still.
2 weeks ago today D's sister passed away. She had a short battle with cancer. D was able to go home and be with his family. He seems to be doing ok with it, although he is on valium to help relax because obviously he is under a huge amount of stress.
I thought this next example was my number 2 but I was wrong. My best friend's mom was diagnosed with terminal lung and liver cancer the same week that D's sister passed. Even though they gave her about a year I thought that the imending death was number 2. I'll get back to this.
Last week my wonderful Jenn passed away. She was a part of the CF family. I took this pretty hard, I was pretty close to her. Its hard to imagine that I will never see her in chat again. She was very sipportive, funny, and had a lot of wisdom about life in general and CF especially. I miss her so much. Breathe easy my friend.
Last night my friend's mom, the one mentioned above, went into resperatory failure and passed away on the way to the hospital. In a way this was for the best, no long drawn out suffering from the cancer. Of course my friend is taking this pretty hard, he was not prepared for this since he thought he had about a year with her still.
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