Saturday, September 18, 2010

Tattoo Evolution

So, I've decided that I want to add to my CF tattoo (the 3 purple roses). The roses represent me, my brother, and our cousin, all with CF. I want to add a fully bloomed rose for each of close cysters and fibros that I've met, and a rose bud for the ones who died before I got to meet them. The original roses are the only ones that will be purple, all the others will be the color that the person chooses (or in the case where they have passed away their favorite color or the closest thing to it other than purple). I'm thinking of doing banners for each rose with the person's name but I'm not sure about that yet. I hope to add 4 or 5 roses every year as I have the money. Eventually this thing will be a sleeve because we're talking about a lot of people.

Sunday, September 12, 2010

Neuro follow up.

My MRI and EEG were totally normal! As it stands now my chances of another seizure are about 25% and I don't have to go back to neuro unless I have another one!

Friday, September 3, 2010

Nuerology appointment.

So I saw the neurologists today for an evaluation of my seizure. They can't pinpoint a cause for it, so as far as that goes I got no answers. It still could have been the PTC 124 but the company hasn't had any other reports of seizures. Hopefully now that I've had my follow up visit they will unblind me soon.

They want to get an MRI because its a better image for them to go off of. It could show very tiny blood vessels problems or very tiny tumor(s) but the chances of either of those is small. The more they rule out the more my chances of having another seizure decrease. They also want an EEG to check my brain waves. So we'll get those done and see what happens.