tag:blogger.com,1999:blog-4799370907944551114.post5564923380316389155..comments2021-05-13T11:29:59.307-07:00Comments on Little Tad Pole, Big Pond: My trip to Denver.Princess Jesshttp://www.blogger.com/profile/10016554702549722778noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-4799370907944551114.post-79774265569810588282009-05-07T17:52:00.000-07:002009-05-07T17:52:00.000-07:00yeah, Jess. I was thinking about you all day on W...yeah, Jess. I was thinking about you all day on Wednesday. I'm glad you have some new ideas and were appreciated! I'm there 6/24.<br />LauraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-83944266142391533992009-05-07T17:13:00.000-07:002009-05-07T17:13:00.000-07:00Just wanted to add that Jess's experience wasn't t...Just wanted to add that Jess's experience wasn't that unusual for the Denver clinic. I seriously wish that more clinics would see how the Denver clinic works and use them as a standard for their own treatment of patients.<br /><br />Jess, I am so glad that you finally got here and got some good treatment! I've been out of the CF loop (I do that a lot), so I am glad Darby pointed me to your post. Take care, and if you need any Denver advice I'd be glad to help you out!<br /><br />Hugs!<br />~saltysaltyhttp://www.saltyandsweet.orgnoreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-42144128688380389842009-05-07T17:05:00.000-07:002009-05-07T17:05:00.000-07:00Awesome news Jess I am SO excited for you!!!!!!!!!...Awesome news Jess I am SO excited for you!!!!!!!!!!!!<br /><br />Kinda makes me wanna go to them even though I love my DR and center LOLAmyhttps://www.blogger.com/profile/12354849302798817593noreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-80779162614148784472009-05-07T16:41:00.000-07:002009-05-07T16:41:00.000-07:00Thanks everyone! I am SO glad that I did this. I...Thanks everyone! I am SO glad that I did this. I have been so discouraged with UW and Denver was pretty much the complete opposite! I am looking forward to my next PFTs to see what the xopenex does.Princess Jesshttps://www.blogger.com/profile/10016554702549722778noreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-76626753782581652822009-05-07T16:38:00.000-07:002009-05-07T16:38:00.000-07:00I LOVE THAT YOU DID THIS!!!!!! WOW!!!!!
Such gre...I LOVE THAT YOU DID THIS!!!!!! WOW!!!!! <br /><br />Such great amazing info that you got while you were there. i agree 100% that it's suprising you've only had IV's 3 times....<br /><br />Sounds like an amazing center. Denver has been next on my radar (after Stanford and Minnesota) and you have really inspired me.<br /><br />I have a problem by my right breast too, and when I can, I get someone to do manual CPT. But a device to help me get in that area would be so great. WHAT A GREAT IDEA! Thanks so much for posting.<br /><br />I'm so happy for you. Asthma component is huge, and it's amazing that they're targeting that too.<br /><br />I really can't tell you enough how excited I am for you. What a great visit! HUGS!!!!NoExcuseshttps://www.blogger.com/profile/01015122167362668804noreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-76538262788836773092009-05-07T16:27:00.000-07:002009-05-07T16:27:00.000-07:00Hey Jess, congrats! They really seem to know what...Hey Jess, congrats! They really seem to know what they're doing in Denver. I'm glad you're getting such good care.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-61627449078092949102009-05-07T16:12:00.000-07:002009-05-07T16:12:00.000-07:00Wow Jess. Sounds like you had a great appointment ...Wow Jess. Sounds like you had a great appointment with them! I think that you will get a lot more out of them than you will UW!Pattihttps://www.blogger.com/profile/04633677855751585555noreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-88540980072328964702009-05-07T16:00:00.000-07:002009-05-07T16:00:00.000-07:00The clinic makes SUCH a difference. I'll be intere...The clinic makes SUCH a difference. I'll be interested in seeing if treating the asthma component differently raises improves your pfts at all. I'm so glad it went well. Yay!!Cassienoreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-13071155163628818252009-05-07T15:48:00.000-07:002009-05-07T15:48:00.000-07:00Yes I will be in chat!!
Megan, I think the doc's ...Yes I will be in chat!!<br /><br />Megan, I think the doc's point was that I am being vastly UNDER treated by only having 3 rounds of IVs. My PFTs should not be as low as they are right now in relation to my amount of lung damage.Princess Jesshttps://www.blogger.com/profile/10016554702549722778noreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-1637190669793276802009-05-07T13:25:00.000-07:002009-05-07T13:25:00.000-07:00Jess, will you be in chat tonight? I can update y...Jess, will you be in chat tonight? I can update you on my Endo appt. You will be happy!!<br /><br />KevinAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-58194239035433467772009-05-07T13:19:00.000-07:002009-05-07T13:19:00.000-07:00wow your ears must have been ringing b/c just this...wow your ears must have been ringing b/c just this morning i was wondering if you made it to denver yet. Anyways sounds like it was a pretty good visit. hope the new meds work good. and did you make like a follow up appointment with denver or are you just following through with UW?Courtneyhttps://www.blogger.com/profile/11207160222825341511noreply@blogger.comtag:blogger.com,1999:blog-4799370907944551114.post-25819175697927211162009-05-07T12:40:00.000-07:002009-05-07T12:40:00.000-07:00Woah. I've been having regular IV antibiotics sinc...Woah. I've been having regular IV antibiotics since I was 7, I'd say I'd have had about 35 rounds of IVs, although thats just a guess based on the fact that I've had 3 -4 rounds of IVs a year since I started them. <br /><br />Phew, you're one lucky lass compared to me! lol XxMeganhttps://www.blogger.com/profile/10070132392649221615noreply@blogger.com